Wednesday, May 21, 2025
  • About Us
  • Contact Us
No Result
View All Result
Health News, Pharma, Doctor, Nutrition, Fitness, Wellness, Healthcare Industry, Business, Health Magazine
  • Home
  • Being a Doctor
    Uptick in Respiratory and Cardiac Problems due to Poor Air Quality grips Delhi

    Uptick in Respiratory and Cardiac Problems due to Poor Air Quality grips Delhi

    Climate Change: The Hidden Catalyst of Viral Outbreaks

    Climate Change: The Hidden Catalyst of Viral Outbreaks

    Robotic kidney surgery successfully performed on a 21-day old infant

    Robotic kidney surgery successfully performed on a 21-day old infant

  • Top Stories
    Free medical camp held in Rohtak to honour legacy of Dr. S.N. Chugh

    Free medical camp held in Rohtak to honour legacy of Dr. S.N. Chugh

    Health Minister chairs a review meeting with key experts and officials on new XE-variant

    Health Min Bans 14 Fixed-Dose Combination Drugs in India

    BestDoc expands its operations to Dubai

    BestDoc expands its operations to Dubai

  • Industry Spotlight
    Mumbai Oncocare Centre raises $ 10 million in Series A funding

    2070 Health raises $30M in seed funding

    Freudenberg Medical’s Bold Leap: Embracing India’s Dynamic Healthcare Landscape

    Freudenberg Medical’s Bold Leap: Embracing India’s Dynamic Healthcare Landscape

    Metropolis Healthcare launches test for HSCT & solid organ transplantation

    Metropolis Healthcare launches test for HSCT & solid organ transplantation

  • Specialities
    • All
    • Cardiology
    • Dentistry
    • Dermatology
    • Diabetology
    • Gastroenterology
    • Gynaecology
    • Neurology
    • Oncology
    • Ophthalmology
    • Oral Care
    • Orthopaedics
    • Paediatrics
    • Psychiatry
    • Radiology
    Breast Cancer: Better safe than sorry

    Breast Cancer: Better safe than sorry

    Premature baby girl gets a new lease of life

    Premature baby girl gets a new lease of life

    Understanding why deadly brain cancer comes back

    Understanding why deadly brain cancer comes back

  • Wellness Matters
    • All
    • Being a Mom
    • Fitness & More
    • Healthy Lifestyle
    • Nutritious Diet
    Beware gym goers: weight lifting might make your veins stick out

    Beware gym goers: weight lifting might make your veins stick out

    Top Diet Tips for students to beat stress this exam season

    Top Diet Tips for students to beat stress this exam season

    How better planning, behaviour regulation may lead to eating less fat

    How better planning, behaviour regulation may lead to eating less fat

  • Pharma Focus
    How India is making its presence felt in the world pharmaceutical market

    How India is making its presence felt in the world pharmaceutical market

    Top Health News of the Day: July 22, 2021

    8,001 Janaushadhi Kendras opened so far covering all the districts of the country

    India to have more than sufficient stock of Liposomal Amphotericin B drug: Mansukh Mandaviya

    India to have more than sufficient stock of Liposomal Amphotericin B drug: Mansukh Mandaviya

Health News, Pharma, Doctor, Nutrition, Fitness, Wellness, Healthcare Industry, Business, Health Magazine
  • Home
  • Being a Doctor
    Uptick in Respiratory and Cardiac Problems due to Poor Air Quality grips Delhi

    Uptick in Respiratory and Cardiac Problems due to Poor Air Quality grips Delhi

    Climate Change: The Hidden Catalyst of Viral Outbreaks

    Climate Change: The Hidden Catalyst of Viral Outbreaks

    Robotic kidney surgery successfully performed on a 21-day old infant

    Robotic kidney surgery successfully performed on a 21-day old infant

  • Top Stories
    Free medical camp held in Rohtak to honour legacy of Dr. S.N. Chugh

    Free medical camp held in Rohtak to honour legacy of Dr. S.N. Chugh

    Health Minister chairs a review meeting with key experts and officials on new XE-variant

    Health Min Bans 14 Fixed-Dose Combination Drugs in India

    BestDoc expands its operations to Dubai

    BestDoc expands its operations to Dubai

  • Industry Spotlight
    Mumbai Oncocare Centre raises $ 10 million in Series A funding

    2070 Health raises $30M in seed funding

    Freudenberg Medical’s Bold Leap: Embracing India’s Dynamic Healthcare Landscape

    Freudenberg Medical’s Bold Leap: Embracing India’s Dynamic Healthcare Landscape

    Metropolis Healthcare launches test for HSCT & solid organ transplantation

    Metropolis Healthcare launches test for HSCT & solid organ transplantation

  • Specialities
    • All
    • Cardiology
    • Dentistry
    • Dermatology
    • Diabetology
    • Gastroenterology
    • Gynaecology
    • Neurology
    • Oncology
    • Ophthalmology
    • Oral Care
    • Orthopaedics
    • Paediatrics
    • Psychiatry
    • Radiology
    Breast Cancer: Better safe than sorry

    Breast Cancer: Better safe than sorry

    Premature baby girl gets a new lease of life

    Premature baby girl gets a new lease of life

    Understanding why deadly brain cancer comes back

    Understanding why deadly brain cancer comes back

  • Wellness Matters
    • All
    • Being a Mom
    • Fitness & More
    • Healthy Lifestyle
    • Nutritious Diet
    Beware gym goers: weight lifting might make your veins stick out

    Beware gym goers: weight lifting might make your veins stick out

    Top Diet Tips for students to beat stress this exam season

    Top Diet Tips for students to beat stress this exam season

    How better planning, behaviour regulation may lead to eating less fat

    How better planning, behaviour regulation may lead to eating less fat

  • Pharma Focus
    How India is making its presence felt in the world pharmaceutical market

    How India is making its presence felt in the world pharmaceutical market

    Top Health News of the Day: July 22, 2021

    8,001 Janaushadhi Kendras opened so far covering all the districts of the country

    India to have more than sufficient stock of Liposomal Amphotericin B drug: Mansukh Mandaviya

    India to have more than sufficient stock of Liposomal Amphotericin B drug: Mansukh Mandaviya

No Result
View All Result
Health News, Pharma, Doctor, Nutrition, Fitness, Wellness, Healthcare Industry, Business, Health Magazine
No Result
View All Result
Home News of The Day

₹16 crore drug is the hope for Ayaansh; ₹2.35 crore collected through crowd funding so far

A gene therapy costing ₹16 crore is the only shot of life for children with Spinal Muscular Atrophy (SMA) Type 1, a rare genetic disease

February 24, 2021
₹16 crore drug is the hope for Ayaansh; ₹2.35 crore collected through crowd funding so far

By Health In Five Writer

A couple from Hyderabad Rupal and Yogesh Gupta have taken to crowd funding on ImpactGuru.com to cover the cost of Zolgensma therapy for their two-year-old son Ayaansh who was diagnosed with Spinal Muscular Atrophy (SMA) Type 1. The Zolgensma one-time gene replacement therapy costing ₹16 crore is commercially available in United States and is billed as a ray of hope for treating children below with SMA type 1, a rare genetic disease.

Through the crowd funding route, within a span of few weeks, the parents of the Ayaansh have managed to raise Rs 2.35 crores cumulatively contributed from over 8000 donors. According to the parents, this is the ideal time for the youngster to get the medicine, as the Zolgensma therapy is approved only for children who have a bodyweight of less than 13.5 kilograms while the youngster’s weight is at ten kilograms.

SMA is a disease caused by loss of nerve cells, which carry electrical signals from the brain to the muscles. The protein needed for this signalling is coded by a gene for which everyone has two copies – one from the mother and the other from the father. A child develops this disorder only if both the copies are faulty. Without treatment, this disease is ultimately fatal. The disease as it progresses, makes it extremely difficult for the babies to carry out basic activities like sitting up, lifting their head or swallowing milk.

“This is the ideal time for little Ayaansh to take the medicine as it is only approved for children who have a bodyweight of fewer than 13.5 kilograms. Ayaansh’s weight is 10 kilograms. With all your support we have been able to reach another milestone – We have raised 2 crore INR in 2 weeks. We need 14 crore more to give our little Ayaansh a chance to fight and defeat SMA. Every donation and support matters a lot to us”, appeals Rupal. 

To donate, please click on the below link:

https://www.impactguru.com/fundraiser/donate-to-ayaansh-gupta

To know more about Ayaansh’s health:

Facebook: https://m.facebook.com/Ayaanshfightssma

Instagram: https://instagram.com/ayaansh_fights_sma

Twitter: https://twitter.com/FightsSma?s=08

 

Follow Health In Five on LinkedIn, Facebook, Twitter & Instagram

Subscribe on WhatsApp & Telegram to receive real time updates

Previous Post

महिलाओं का स्वास्थ्य अवम पोषण।Health Talk by Dr. Nutan Ray

Next Post

Cabinet approves Production Linked Incentive Scheme for Pharmaceuticals

Health in Five

Health in Five

Related Posts

ECHO India and PGICH Noida assess progress of National Program on Thalassemia Control
News of The Day

ECHO India and PGICH Noida assess progress of National Program on Thalassemia Control

February 20, 2024
SRV Hospitals launches new tertiary care facility in Nashik
News of The Day

SRV Hospitals launches new tertiary care facility in Nashik

September 18, 2023
BDR Pharma launches generic version for cancer treatment
News of The Day

BDR Pharmaceuticals launches Dalbonova injections

August 28, 2023
Prominent Cardiologist’s Untimely Demise Highlights Rising Heart Health Concerns in India
News of The Day

Prominent Cardiologist’s Untimely Demise Highlights Rising Heart Health Concerns in India

June 8, 2023
IIT Madras launches Department of Medical Sciences & Technology
News of The Day

IIT Madras launches Department of Medical Sciences & Technology

May 12, 2023
A 45-year-old man undergoes a successful kidney transplant
News of The Day

A 45-year-old man undergoes a successful kidney transplant

May 8, 2023
Next Post
Cabinet approves Production Linked Incentive Scheme for Pharmaceuticals

Cabinet approves Production Linked Incentive Scheme for Pharmaceuticals

A metallic pin successfully removed from a child’s lung after 2 years

A metallic pin successfully removed from a child’s lung after 2 years

  • Trending
  • Comments
  • Latest
New study reveals where memories of familiar places are stored in the brain

New study reveals where memories of familiar places are stored in the brain

May 17, 2021
47yr old man with a rare complication of deep vein thrombosis successfully treated

47yr old man with a rare complication of deep vein thrombosis successfully treated

February 5, 2021
Brain aneurysm successfully treated using a contour device

Brain aneurysm successfully treated using a contour device

January 25, 2021

Health Talk by Dr. Nutan Ray

September 23, 2020
Free medical camp held in Rohtak to honour legacy of Dr. S.N. Chugh

Free medical camp held in Rohtak to honour legacy of Dr. S.N. Chugh

Cytology Aiding in Early Breast Cancer Detection

Cytology Aiding in Early Breast Cancer Detection

Top Tips to Avail Home Healthcare Services

Top Tips to Avail Home Healthcare Services

Easy Home Exercises when locked up during Coronavirus Pandemic

Easy Home Exercises when locked up during Coronavirus Pandemic

Free medical camp held in Rohtak to honour legacy of Dr. S.N. Chugh

Free medical camp held in Rohtak to honour legacy of Dr. S.N. Chugh

November 4, 2024
Uptick in Respiratory and Cardiac Problems due to Poor Air Quality grips Delhi

Uptick in Respiratory and Cardiac Problems due to Poor Air Quality grips Delhi

February 22, 2024
ECHO India and PGICH Noida assess progress of National Program on Thalassemia Control

ECHO India and PGICH Noida assess progress of National Program on Thalassemia Control

February 20, 2024
Climate Change: The Hidden Catalyst of Viral Outbreaks

Climate Change: The Hidden Catalyst of Viral Outbreaks

September 25, 2023
More Media More Media

About Us

“The extension to all peoples of the benefits of medical, psychological and related knowledge is essential to the fullest attainment of health.” “Health is a state of complete mental, social and physical well-being, not merely the absence of disease or infirmity.”

Read More

Categories

  • Ayush
  • Being a Doctor
  • Being a Mom
  • Cardiology
  • Covid Corner
  • Dentistry
  • Dermatology
  • Devices & Equipments
  • Diabetology
  • Digital Health
  • Featured Videos
  • First Opinion
  • Fitness & More
  • Gastroenterology
  • Gynaecology
  • HealthInFive Pulse
  • Healthy Lifestyle
  • Industry Spotlight
  • Labs@Work
  • Neurology
  • News of The Day
  • Nutritious Diet
  • Oncology
  • Ophthalmology
  • Oral Care
  • Orthopaedics
  • Paediatrics
  • Pharma Focus
  • Podcasts
  • Psychiatry
  • Radiology
  • Specialities
  • Top Stories
  • Wellness Matters

Quick Links

  • About Us
  • Contact Us
  • Privacy Policy
  • Terms and Conditions

Find us on Social Media

copyright@2022 DD100 Health

No Result
View All Result
  • Home
  • Being a Doctor
  • Top Stories
  • Industry Spotlight
  • Specialities
  • Wellness Matters
  • Pharma Focus

copyright@2022 DD100 Health